When Michiel Vandeweert was a child, doctors told his family that he would probably not make it to age 12.

He wrote his own name on a book cover, not as a patient but as a person. On screen, he turned a fragile body into fearless presence, inviting thousands to sit beside him while he played, joked, and spoke plainly about a life without guarantees.

With his sister Amber, he chose radical honesty, letting a documentary capture the quiet heroism of everyday continue reading …